Why are we so afraid of Down Syndrome?

A well written article from another mum who seems to have had similar experiences to ourselves across the pond…

Put simply people are afraid of the unknown…..the fact that we test antenatally for Downs at all, surely means its a bad thing to have?….Something that must be screened out at all costs?!  Add to that a negative attitude from medical staff that you may encounter and its no wonder the statistics for abortion of foetuses with Down Syndrome are so high.

If we stopped using eugenics to wipe out this wonderful cross-section of humanity then everyone might have an opportunity to meet/ know/ love/ befriend a person with DS and be the better for it!  The fear factor would no longer apply…..

Read her article here  

School Sports Day

Careful balancing of the egg

Careful balancing of the egg

Thought I’d share out Sports Day experiences with you thus far (a grand total of 2!)

Last year, I have to confess I was a little nervous on our first Sports Day.  After all, competitive sports is not really my daughter’s thing – she has little legs which are still building up their strength and she is easily caught off balance due to her extraordinary flexibility and hypotonia.  I worried for her self-esteem if she came last in all the events….

I needn’t have worried….I laughed a lot (and wiped my moist eyes!) when she came last in her running race – she didn’t have a hope of keeping up with her much longer legged peers but she did it with such aplomb!  She didn’t give 2 hoots that they had left her for dust. Instead, she merrily waved to her crowd as she ran past whilst ALL the kids in the school chanted her name in encouragement!  She felt like a champion!  I felt humbled that she had found her way into so many peoples hearts and how they look out for her, support her and encourage her – children and adults alike.

Then she went on to shamelessly cheat in the egg and spoon race – there was some definite use of the other hand to hold the egg on!

However, this year…..the running race was pretty much the same, she came last to great cheers and with a big beaming smile on her face!  However, in the egg and spoon race – there was NO cheating and she came 2nd out of 4 – steady pace and careful technique won over the 2 boys behind her – very proud! 🙂

Running back to take 2nd place for the green team!

Running back to take 2nd place for the green team!

Out of the mouths of babes!

“I find there’s so many depressing articles, videos and pictures on Down syndrome, and I want to make these films to show the happiness and joy Magdalena brings to our lives I don’t have to try, we’re not a ‘special family’ Magdalena’s not an angel, we just all love each other. And this is just our lives. Disability is natural, we just live our ordinary lives, and I want to show the world that pity or sadness has no place here! ” 

Agnieszka Kolaczynska age 10, March 2013


Who is looking after who?

A beautifully written post about a man’s relationship with his big sister who has a learning disability.  This was posted on the Mencap website in April 2013.


The thoughts echo my own observations of my daughter….I quickly realised that it is often MY worries and fears and expectations, not hers, that might hold her back!  She is courageous, determined, finds her own ways around any difficulties she faces and she can read people like a book!  I try and let her tell me what she can and can’t do (within reason!) – she may not always be able to voice all that she understands/ wants/ needs/ thinks but given the opportunity she certainly shows us!  I try not to wrap her in cotton wool or baby her or worse, underestimate her, as sure as eggs she’ll prove me wrong!

Alfie: Perfect and he knows it!

Circle 21 a ‘think global, act local’ organisation that supports families who have children with Down Syndrome around the world, based in Toronto, and a bit like our PSDS, added a gorgeous image of this little chap, Alfie, to their Facebook timeline.

At the time of posting, the image had 91,082 likes and 3,057 comments, with 3,752 on Facebook, with, from what can be seen (many of the comments are in Scandinavian), not a single negative one!

Alfie, we salute you!

George Takei: Never let them tell you there’s a limit on what’s possible.

Today Mr Sulu of Star Trek, or as he is better known, George Takei, posted a picture from one of the sites that we link to idscforlife.org:

The sentiments of the image are exactly what we believe, follow and support. Thank goodness for friends, family and professionals who DO NOT think as this girl’s first teacher did.

“Never look at limitations.. Push the boundaries! Break free and fly!” attributed to Colette Pretorius on George’s comments for the image

At time of posting the image had 94,963 likes and 24,131 shares

Thank you George for making the situation more visible to your masses of ‘followers’. We salute you!